Princeton Public Library
Community Resource File
Huntington's Disease Society of America, New Jersey Chapter (CRF ID #781)
ALTERNATE NAME
HDSANJ
ADDRESS
114B South Main Street,
Box 67A
Cranbury, NJ 08512
PHONE
609-448-3500
FAX
609-448-3521
EMAIL
info@hdsanj.org
ADMINISTRATOR
Patricia Velasco, Executive Director
CONTACT PERSON
Elaine Schwartz, Chapter Administrator
HOURS
MON-FRI: 9:00 AM - 5:00 PM
DESCRIPTION
A voluntary non-profit health organization whose mission is to promote and support research directed at discovering a treatment and ultimately a cure for Huntington's Disease (HD); to help individuals affected by HD and their families through support and services; and to educate both the public and health care professionals about HD.
SERVICES
Telephone helpline 800-424-2494
Support services: helps families obtain counseling, social, financial, legal help and referrals to other community services
Medical services - comprehensive diagnostic evaluation/treatment and rehabilitation therapies
Genetic services: makes available prenatal and presymptomatic testing and genetic counseling
Support Groups
Placement and Protection: helps families place patients in long-term care facilities and follows their progress
Professional in-service education
PROGRAMS
Central Jersey HD Support Group: Meets second WED of the month from 6:30 PM - 8:00 PM at Leisure Chateau Care Center, 962 River Avenue, Lakewood, NJ. Call Judy Cerciello, MSW, LNHA at 732-370-8600.
HD Support Group for Caregivers. Meets 4th WED of the month, 6:30 P.M. - 8:00 P.M. at UMDNJ, UBHC North Building, 667 Hoes Lane, Piscataway, NJ. Call Christine Hogan, LCSW, at 732-235-5993.
Central Jersey: Comprehensive Care Clinic at Piscataway. One of 3 Comprehensive Care Clinics serving Northern, Central and Southern regions of New Jersey, operated in collaboration with UMDNJ's 3 medical schools. All 3 clinics provide ongoing specialized treatment for individuals with Huntington's Disease as well as presymptomatic DNA testing for individuals at risk in accordance with the ethical guidlines recommended by the HDSA.
The Piscataway Clinic is held at UMDNJ-RWJ Medical School, Department of Psychiatry, 671 Hoes Lane, Room D333. Piscataway. Director: Michael McCormack, PhD - 732-235-5992; Coordinator: Christine Hogan, MSW, LCSW - 732-235-5993; Clinic Nurse: Sandra Egan - 732-235-4919; Program Secretary: Vicki M. Alcorn - 732-235-4402.
PUBLICATIONS
Vision - New Jersey chapter newsletter
SPECIAL EVENTS
Hoopathons- April in Piscataway and Whippany
Golf tournament - June, Suburban Golf Club, Union
Fall Gourmet Coffee Fundraiser - order from NJ chapter office
Softball game - July, Yogi Berra Stadium, Montclair
Fall Bulb sales - order from NJ Chapter office
Paws for the Cause Walk 'n' Wag - Sept. 10, 2006, Lindenwold, NJ; October 28, 2006, West Windsor
Walkathon - Sept. 9, 2006, Belmar, NJ
FOUNDED
1976
SUBJECT
HEALTH CARE AND SERVICES
SUPPORT GROUPS
ADVOCACY
DATE MODIFIED
08-18-06